8/11/13

The R Word

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  It was late afternoon and my mom was cooking dinner. My sister was... well, I actually don't remember what she was doing, and I was in the living room watching TV. Suddenly I heard shouting outside and something hit the front of our house. Startled, I looked out the window. Standing outside my house was the girl who lived down the street from me, shouting and throwing rocks at the front of my house. we went to school together, and for some reason we just never really got along. We tolerated each other. I thought she was a show-off and she thought I was too. I had probably done something or said something at school that day that peeved her off, I don't know. I threw the door open and was shocked at what I heard her yelling. " Melinda's sister is a retard!", "Retard!", "Retard!" "Melinda's sister is retarded!" Each verbal assault was accompanied by rocks hitting my house. The shock quickly faded and anger took over. I ran across the yard and yelled for her to "Take that back!" She kept shouting it and shoved me. I broke her nose. Right there, in my front yard, for all the neighbors to see. I probably should have felt bad or at least a little scared because people saw it. I was, after all, a total goody-goody. But I didn't and I still don't. My dad was watching from the front door, half upset by my outburst and half proud of how I defended my sister. I don't remember anything else that happened that day. I didn't get in trouble aside from a lecture about how resorting violence isn't the right thing to do. 

  I learned how to deal with things like that better and by high school I calmly asked people to please not use that word. If they asked why not, I explained it to them. Everyone I spoke to respected my request and I never heard any of them intentionally use that word in my presence again. When the occasional slip-up happened they always sincerely apologized. Generally, people use this term in a completely benign way and have no idea what the power of that word actually holds. Once they find out, as with most other things that are shrouded in ignorance, they understand better and it changes their perception and behavior. It is for that reason that I am a firm believer in spreading awareness.

  March 6th was the annual "Spread The Word To End The Word" 
awareness day




What is Spread the Word to End the Word? Spread the Word to End the Word is an on-going effort to raise the consciousness of society about the dehumanizing and hurtful effects of the word "retard(ed)" and encourage people to pledge to stop using the R-word. The campaign is intended to get schools, communities and organizations to rally and pledge their support to help create communities of inclusion and acceptance for all people. Learn more about this campaign here 

  The R-word fosters LONELINESS 
“It hurts and scares me when I am the only person with intellectual disabilities on the bus and young people start making “retard” jokes or references. Please put yourself on that bus and fill the bus with people who are different from you. Imagine that they start making jokes using a term that describes you. It hurts and it is scary.” – Joseph Franklin Stephens, Special Olympics Virginia athlete and Global Messenger As evident with my childhood confrontation, there are times, situations and personalities sometimes involved that may not be best suited for an immediate intervention when you hear someone use the R-word.  It simply may be best at times to walk away from a situation, but that doesn't mean you can’t still do good after walking away. 
It Starts With A Voice is an amazing facebook page chronicling the journey of a wonderful family in their quest to end the r-word. If nothing else, please watch this video. I just did and now I'm in tears, happy tears. Other resources to check out (please do!): The World Of Special Olympics NYT: A Word Gone Wrong Barrington Patch: Spread The Word To End The Word denverpost.com The Hurtful Effects Of The R-Word written by Eddie Barbanell from the hit movie “The Ringer"

My Sister


I have a sister (2 yrs older than me) and anyone with a sister knows how is is both annoying and amazing. My relationship with my sister has always been just like any other sibling relationship. We fought growing up and had our fair share o sibling rivalry. My mom recently told me about one incident when we were quite young (young enough that I don't remember it). We were eating dinner, my sister and I were sitting on opposite sides of the table. My sister started to yank the table towards her, so I yanked it right back. This went on for a while, the two of us yanking the table back and forth. My mom was sitting there, laughing, and couldn't help but enjoy the sibling squabble that was so "normal" being displayed in front of her.

  Why would my mom be happy about a "normal" sibling squabble? Because everything else was so "abnormal". My sister has severe disabilities. She has been diagnosed with sever (like, farthest end of the spectrum you can get severe) autism, cerebral palsy, and epilepsy. As a child and teen she was very abusive (towards herself and others) and our mom was constantly covered in bruises. She actually broke our mom's cheek bone once. Many people told my parents to write her off, to put her in a special facility. They never did and never would. My parents' strength was and is superhuman. There wasn't a lot of resources then, so our mom would come up with ways to adapt things for my sister. Her innovation is incredible. My sister needed a bed that was safe, but she was too big for a crib - so my mom and dad made one out of pvc pipes to fit a twin bed. They covered the pvc in large pool noodles and then our mom hand sewed strong mesh around every side. My sister would rip the mesh almost every night and my mom would sit there and sew it back together the next day. She also came up with pj's that she couldn't get out of but buying denim vests and jeans and sewing them together with a zipper in the back to make soft denim coveralls.

Growing up, I loved my sister but man did she get on my nerves! Family outings were dictated by whether or not my sister would allow it. If she was having a bad day, we canceled. If we actually went out and then she abruptly needed to leave, we did. Growing up this was annoying and sometimes hurtful. I would be excited to be going somewhere only to have it canceled because my sister was acting up. I understood it and knew it was right to cancel but the "child" part me was angry. She still can get on my nerves. She has always loved music and needs something playing at all times. She also loves Raffi (not just any Raffi, one particular video on repeat) and prefers that be playing at all times as well. Now, in all fairness this is a major improvement. For years (I mean like 10 year strong!) she loved Barney. Yeah, I don't think I need to explain that one at all. You all are groaning right along with me. Seriously, you know it's bad when you catch your dad signing Barney songs in the shower and when you ask him about it he has no recollection of the event at all. Or when you hear it playing in the background of your dreams. Yeah that's fun, let me tell you! She is non-verbal, but very loud. The neighbors can hear her screaming with all of our doors and windows closed. I love her to death, but she can be such a pain in the butt!

I'm allowed to say that because I'm her sister. She will be 30 soon and still lives at home. She is still as loud as ever but much calmer. She seems happier, more relaxed. That makes me so happy. There are still rough days and her health is slowly getting worse with every passing year, but my family is committed to giving her the best life we possibly can.

My childhood may have been different, but I wouldn't want to have any other sibling in he world.







7/29/13

Everyday Blessings

On a good day I see my house hold in a positive, uplifting light: Children laughing, playing, growing, and loving. A family united, not divided. Caring and giving.

But the truth is that life engulfs us. The mundane chores of the everyday consume us and we soon forget how precious it all is. Even the tedious, tiring events become joyous when looked upon with fresh eyes. If it were all to end tomorrow I certainly would savor each of these moments. The things that usually leave me tired, haggard, and run down (or even bored) would be celebrated. I would realize that I take so much for granted because soon, it will all end. Then I shall long for those tiring, tedious, mundane events of yesterday. I must always remember this. Savor the moments. Be joyous in the everyday. In all of life's uncertainty, those everyday chores should be greeted with enthusiasm and counted as the blessings they are. 

My Mundane Everyday and The Joys That Accompany It

  •  Waking up hearing Kelly asking if she can get up yet. Then jumping on me saying "mama, get up!"
  •  Alex's big hugs and huge smile every morning when I go to get him out of bed
  •  The beautiful pitter-patter of tiny feet
  •  Sleepy toddler monologues
  •  Alex being "sneaky" and smirking as he gets into mischief 
  • How Kelly lights up when we have a "task" that needs to be accomplished and can not be done with out her her
  • Their love of animals
  • How they play with each other
  • Kisses, hugs, and noses for Daddy. Only Daddy.
  • Picking flowers in the yard
  • Saying "good night" to the moon and stars
  • The joy on their faces when Mike walks in the door after work
  • Washing their sippy cups and tiny silverware
  • Folding their adorable little cloths
  • Putting the blankets on them after they've fallen asleep
  • Laying with Kelly, reading while she holds my hand
  • Cuddling with Alex late at night , just the two of us
  • How much Alex enjoys bath time
  • How Kelly wants to be just like Mama
  • Kelly's little whiny plea of "Mama, hold me"
  • Alex's ability to just roll with Kelly's drama, and always finding the humor in her tantrum
  • Reading "Guess How Much I Love You" and "The Very Hungry Caterpillar"
* Note: This was originally written in May 2012, so a lot of these things have changed... And I do miss them so very much. H

Mora Moments

have often described my parents' home as an... unusual place. My long-time favorite would be 'The Asylum',which I coined somewhere around age thirteen. Yeah, I know, it's not nice to call your mom's house an asylum - but seriously, it's not a negative thing. It's an ode to the vast chaos that goes on and how everyone in the family has grown accustomed to it. It's endearing. Why do I call it 'The Asylum'? Well, let me give you some background information. 

My parents' house is always very busy and loud. Very loud. It's "Fellowship of the Ya-Ya Sisterhood" meets "My Big Fat Greek Wedding". My sister (2 years older than me) has severe autism, cerebral palsy, and epilepsy. She is much calmer now, but as a kid she was very aggressive. More often than not, she is hollering about something. My mother's family is Greek and is all up in each other's business. At any moment they may show up and abduct you! I actually really like that, though. My dad is quite a bit like Shep from Ya-Ya, only not so much the innocent bystander. 

Ya-Ya Sisterhood, Sidda talking to her father, Shep: "and the inmate takes over the asylum." - Sidda. "No, it's more like Stockholm syndrome." - Shep 
Exactly!

Add in some animals and you pretty much have the whole picture.

The animals in our family have always had more of a supporting role in the chaos, that is, until Samora. 

My cousin called my dad up one day and told him about this littler of puppies a neighbor had. My cousin became increasingly aware that these puppies were not going to have a good future. The owners didn't want them and just wanted to get rid of them.The mother was a chow, and my dad loves chows. No one knew who the father was, but the puppies looked like pure chow. So my dad drove up and took a look. This adorable little 8wk old puff ball, bouncing around,ended up coming home with him. That first car ride should have been the tip-off. Samora rode on the passanger's seat, inside a small cardboard box. Apparently, she was able to wrestle her way out of the box and go all Cujo on my dad. This little 8 wk old puppy tore him up like a wolverine. I had never been scared of a dog before, especially not a little puppy. But this thing was crazy! We all started calling her Taz since she embodied the little devil so well. Anything was fair game. If I wanted to go to sleep, I would barricade myself with anything and everything in my room. It wasn't much help though, because she would just climb the whole thing. If I was working on homework, well, forget it. Those jaws were shredders. If I wanted to go on my trampoline I had to throw a stick a far as I could, wait for her to chase it, and make a mad dash for it - hoping I made it in time. It was clear that this was not a "normal" dog, she was something more. Something wild. My dad and I did as much research as we could on raising dog mixes, in case that was, in fact, what we were dealing with. In time she became a wonderful addition to our family. She is 12 years old now and is just as "different" - think of her as an extreme version of Marmaduke. She our little Miss Priss and I love her dearly.






It seems like everyday that dog is doing something that makes us go "what is the dog doing?" Or better yet, something that makes us go "Good grief Mora, it's really ok." So I've decided to capture these little Mora Moments. Enjoy! 

Animal Saplings

This area is dedicated to animal rights, welfare, and conservation. These are some AMAZING organizations and outreach programs: 

Defenders of Wildlife | Protecting Native Animals and Their Habitats 

http://www.defenders.org/ Visit the Defenders website to learn more about what we're doing to protect our wildlife and wild places—and what you can do to help. The mission of Wolf Haven International is to "Conserve and protect wolves and their habitat." Wolf Haven accomplishes its mission through providing sanctuary, education and conservation. We are a nonprofit 501(c)(3) organization that has worked for wolf conservation since 1982. We rescue and provide sanctuary for displaced, captive-born wolves, promote wolf restoration in historic ranges and educate the public about the value of all wildlife.

Animal jewelry, clothing & gifts. Orders feed & shelter rescued pets.
The International Wolf Center provides complete wolf information on wolf biology, their environment and interaction with humans.

Reflections

Reflection 

I know its February and, yes, its not January anymore, but it's always a good time for reflection. I am a serial list maker and given how fast time goes by, I feel it is absolutely necessary to stop and remember the past, ponder the future, and savor the now. Personally, I think the biggest goal/aspiration we all have is to be the perfect parent. I want so badly to be the best mother my kids could ever have. Then, when I'm frustrated and my patience is running low I get the over-whelming sense that I'm not even close.  Even more frustrating is when I'm having a "bad" day. Any mom who deals with a chronic illness (either they are the ones diagnosed or it's someone else in the family) can tell you about this frustration and guilt. I want to give my children the best day, every day and when my spoons are short I have to say "not today" - for anyone who doesn't know about the spoon theory, please check it out - it's extremely important to anyone in proximity to a chronic illness, whether they are the ones diagnosed with it, or a loved one impacted by it.

 Remember:
" Each morning, we are born again." - Buddha 

  "The future belongs to those who believe in the beauty of their dreams." - Eleanor Roosevelt 

  "Worrying is praying for something you don't want." - Bhagavan Das 

  "There are far better things ahead than any we leave behind." - C.S. Lewis 

  " Do the best you can until you know better. Then, when you know better, do better." - Maya Angelo 

Found on Pinterest: You are braver than you believe, stronger than you seem, and smarter than you think. 

All great change are preceded by chaos. The hunk verse is full of magical things patiently waiting for our wits to grow sharper. 

I Found a really great exercise at You Know It Happens At Your House Too
The "I am _____" project 

The exercise is to take five minutes and finish this sentence as many ways as you want. Then, you can post them in her FB page message. She has been posting them in her statuses. Here is mine! I am....
  • A mother to 2 toddlers
  • A former marine wife, newly civilian wife
  • Emotional and sensitive
  • A passionate animal advocate
  • A people pleaser who is not fond of confrontation, but will not hesitate to stand up for my family or any animal needing a voice
  • Living with an invisible illness
  • Frequently running out of spoons
  • Trying desperately to be the best mother, wife, sister, and daughter I can be
  • Deathly afraid of failure - and to a lesser extent, clowns and marionette puppets
  • A little nerdy
  • Abnormally found of school
  • Creative and quirky
  • An eating disorder survivor
I definitely recommend that you do this. Reading everyone else's is very inspiring! And if you are still feeling sub-par, take a look at these numbers 

Today moms (Today.com) partnered with Parenting Magazine and interviewed/surveyed more than 250,000 women to find out how they really feel.

Top 10 Mom Confessions 
1. Mom wants to be alone - 23% of moms crave alone time most, 23% also put sleep as #1 .... Yeah, that's not really a surprise.
2. Mom feels weird about breastfeeding - 18% say they judge other moms for choosing not to breastfeed and 43% say they dropped the extended breastfeeding. I, personally, always planned on breastfeeding. I knew the benefits and wanted the best for my children, but that wasn't exactly how things turned out. Due to my medical conditions I have to take medications daily. Seizure meds, in particular, can be very dangerous when passed through breast milk. I needed to formula feed and I did get those judgmental looks. Because of my circumstances, I never judge women for formula feeding. You don't know their circumstances. It might be the best thing for their baby. 
3. She sends kids to school sick - 49% of working moms let kids go to school with an "iffy" illness (ie: son has a stomach ache, but hasn't thrown up and has no fever). 
4. She wants a do-over - 71% of moms secretly would do it all over a little differently. 23% would choose a different spouse, 21% wished they had more kids, 19% would pick a more flexible career, and 4% questioned kids all together. 
5. Choose sleep over sex - 53% would rather have a good night's sleep over mind-blowing sex. 
6. Distracted by technology - 5% say their children were hurt because they were busy texting or web browsing, 18% have had close calls. 
7. She medicates... her children - 18% say that at desperate times they medicate their children on long trips, etc. 8% said they medicate their children on a regular basis. Hmmmm, does medicating yourself count?
8. She judges other moms - 12% claimed to not give a hoot, 88% say they are judgmental, 66% say that a bratty kid i most likely to bring on judgment (the other big one is health issues), 37% judge moms with over weight kids, 34% judge kids eating junk food. 
9. Mom plays favorites (secretly) - 14% have a fav. 
10. She uses kids to get out of things - 84% think it's a convenient excuse (well, duh), 45% use kids to get out of social obligations about once a month. Well, duh! That's one of the perks! So now that you know you aren't alone, are you feeling better? 

 Another great reflection activity I like to do is my Favorites pages. 

Since my kids are outgrowing things and moving on to the next new obsession so quickly, I've started cataloging them in my Special Book. Every Time I notice that their favorite stuff changes I make a new page and date it. 
 
Basic Outline   
 Name:                     Date: Favorite - Activities: Foods: Toys/Games: Movies/TV Show: BFFs: Color: Anything that sticks out to you as something really important to your child at that time.

Body Confidence

Body Confidence - That's kind of an oxymoron to me... Mix in a young child and the prospect of instilling this illusive psyche and well, that thought alone is more than a little daunting. In the back of my mind, I am always worrying that my children will inherit the body image issues of their parents (more on that later). In truth, I believe that there is a significant genetic link, but that in itself is an entire post. So here are some helpful tips and hints I have found from various sources that are helping me: Compliment all of their good qualities, not just their looks. Applaud their abilities and accomplishments. Expose them to sports, art, charities, etc. Teach about puberty before it happens This is daunting for me. Not a full-on birds-and-bees conversation but an age-appropriate informative discussion.

Project confidence when explaining everything. I you are uncomfortable, tell them that!

Be open and honest. Placing a taboo on this subject matter will shut down communication lines and could instill the assumption that what their body is going through is something embarrassing and gross.

Luckily, my kids are not here yet. A great resource for them to have is "The Girl's Body Book - Everything you need to know for growing up you" this is a great book with very helpful information. 

There is also an equally valuable Boys Body Book. They both cover hygiene, parents, friends, dating, bffs, body image, body changes, school/grades, nutrition, fitness, siblings, sex, relationships, peer pressure, and more. Everything is laid out in a frank manner.

Explain the difference between fantasy and reality. Some people go so far as to say that you shouldn't allow princess stories or video games because they establish a false sense of reality. This seems a bit far fetched to me. As long as they understand that these things are pretend (fantasy), then why should their play be restricted? The imagination is a powerful tool that is shaped during childhood. 

Recent tests have shown that having a well developed imagination is directly linked to success later in life. By making fantasy off-limits you are stripping away their intellect. 

Point out positive role models. Instead of waiting for your child to notice someone of importance (usually due to media publicity), point them out yourself. Some good examples: a community volunteer who goes above and beyond, a devoted parent or teacher, a service member... You get the idea. 

 Don't dismiss sexism - Ive always been against imposing gender stereotypes. Boys can wear pink (its just color, like any other color), girls can play with trucks (they're fun!), etc. When you see sexism, address it with your child. If someone implies that dads work and moms stay home (boys don't do ballet, or whatever), don't reinforce the ideology by ignoring it.  

Focus on being healthy, NOT slim!!! Some fantastic resources that I encourage everyone to check out:






The mission of Operation Beautiful is to post anonymous notes in public places for other people to find.  The point is that WE ARE ALL BEAUTIFUL. You are enough... just the way you are! 

 Their goal: to end negative self-talk 

How it started: A woman decided to leave a positive message for others on the mirrors in public restrooms. 

Join the mission! All you need is piece of paper and a pen. Snap a pic of your note and email it Operation Beautiful with a bit about your experience. Here's a couple of pics sent in to Operation Beautiful:





 
Fit vs Fiction Marci Warhaft-Nadler's “Fit vs. Fiction” program, Marci visits schools and discusses all the misinformation and negative, inaccurate messages that we are bombarded with on a daily basis. 
She also has a Fit vs Fiction blog 
The current childhood obesity epidemic has led to a closer examination of our country's health/fitness habits. Many people have become so consumed with the obesity part of childhood obesity that they fail to see the other side of this epidemic: Eating Disorders. Eating Disorders that are responsible for both weight gain and weight loss. Marci lays out a great list of statistics, including many that I have been telling people about for quite some time. Sadly, many just don't seem to get it. Maybe her list will hit harder (here's hoping)
Her blog is wonderful! Every time I am sent an email notification of a new post I am always eager to read it. 

Several studies have revealed some very SCARY facts: 

Girls as young as 6 and 7 are already worried about getting fat. 25% of them have already dieted. 

81% of 10-year-old have already been on a diet. 

Average-weight girls and overweight girls are just as likely to be on diets. 

By the age of 13, 50% to 70% of girls believe they are overweight. 

Young girls look to peers and parents as role models. They often first hear about diets at home. 

Some girls are afraid of playing sports, for fear of “bulking up” 

Most young women feel significantly worse about themselves after reading a fashion magazine. 


NEDA (National Eating Disorder Association) 

NEDA's Mission NEDA supports individuals and families affected by eating disorders, and serves as a catalyst for prevention, cures and access to quality care. NEDA envisions a world without eating disorders. On their website you will find many helpful links and a wealth of information. There are also events, fundraisers, volunteer and intern opportunities, outreach programs, testimonials, research findings,recovery resources, family and friends sections, and so much more.

 ***NEDAwareness Week***  - the largest education and outreach effort on eating disorders in the United States, taking place February 24-March 2, 2013. The theme is "Everybody Knows Somebody" Find out more info here. If that is even just a little bit helpful, then I am so happy. If not, I'm sorry for rambling on - I do that a lot.