Showing posts with label r-word. Show all posts
Showing posts with label r-word. Show all posts

8/11/13

The R Word

 Follow my blog with Bloglovin 

  It was late afternoon and my mom was cooking dinner. My sister was... well, I actually don't remember what she was doing, and I was in the living room watching TV. Suddenly I heard shouting outside and something hit the front of our house. Startled, I looked out the window. Standing outside my house was the girl who lived down the street from me, shouting and throwing rocks at the front of my house. we went to school together, and for some reason we just never really got along. We tolerated each other. I thought she was a show-off and she thought I was too. I had probably done something or said something at school that day that peeved her off, I don't know. I threw the door open and was shocked at what I heard her yelling. " Melinda's sister is a retard!", "Retard!", "Retard!" "Melinda's sister is retarded!" Each verbal assault was accompanied by rocks hitting my house. The shock quickly faded and anger took over. I ran across the yard and yelled for her to "Take that back!" She kept shouting it and shoved me. I broke her nose. Right there, in my front yard, for all the neighbors to see. I probably should have felt bad or at least a little scared because people saw it. I was, after all, a total goody-goody. But I didn't and I still don't. My dad was watching from the front door, half upset by my outburst and half proud of how I defended my sister. I don't remember anything else that happened that day. I didn't get in trouble aside from a lecture about how resorting violence isn't the right thing to do. 

  I learned how to deal with things like that better and by high school I calmly asked people to please not use that word. If they asked why not, I explained it to them. Everyone I spoke to respected my request and I never heard any of them intentionally use that word in my presence again. When the occasional slip-up happened they always sincerely apologized. Generally, people use this term in a completely benign way and have no idea what the power of that word actually holds. Once they find out, as with most other things that are shrouded in ignorance, they understand better and it changes their perception and behavior. It is for that reason that I am a firm believer in spreading awareness.

  March 6th was the annual "Spread The Word To End The Word" 
awareness day




What is Spread the Word to End the Word? Spread the Word to End the Word is an on-going effort to raise the consciousness of society about the dehumanizing and hurtful effects of the word "retard(ed)" and encourage people to pledge to stop using the R-word. The campaign is intended to get schools, communities and organizations to rally and pledge their support to help create communities of inclusion and acceptance for all people. Learn more about this campaign here 

  The R-word fosters LONELINESS 
“It hurts and scares me when I am the only person with intellectual disabilities on the bus and young people start making “retard” jokes or references. Please put yourself on that bus and fill the bus with people who are different from you. Imagine that they start making jokes using a term that describes you. It hurts and it is scary.” – Joseph Franklin Stephens, Special Olympics Virginia athlete and Global Messenger As evident with my childhood confrontation, there are times, situations and personalities sometimes involved that may not be best suited for an immediate intervention when you hear someone use the R-word.  It simply may be best at times to walk away from a situation, but that doesn't mean you can’t still do good after walking away. 
It Starts With A Voice is an amazing facebook page chronicling the journey of a wonderful family in their quest to end the r-word. If nothing else, please watch this video. I just did and now I'm in tears, happy tears. Other resources to check out (please do!): The World Of Special Olympics NYT: A Word Gone Wrong Barrington Patch: Spread The Word To End The Word denverpost.com The Hurtful Effects Of The R-Word written by Eddie Barbanell from the hit movie “The Ringer"

My Sister


I have a sister (2 yrs older than me) and anyone with a sister knows how is is both annoying and amazing. My relationship with my sister has always been just like any other sibling relationship. We fought growing up and had our fair share o sibling rivalry. My mom recently told me about one incident when we were quite young (young enough that I don't remember it). We were eating dinner, my sister and I were sitting on opposite sides of the table. My sister started to yank the table towards her, so I yanked it right back. This went on for a while, the two of us yanking the table back and forth. My mom was sitting there, laughing, and couldn't help but enjoy the sibling squabble that was so "normal" being displayed in front of her.

  Why would my mom be happy about a "normal" sibling squabble? Because everything else was so "abnormal". My sister has severe disabilities. She has been diagnosed with sever (like, farthest end of the spectrum you can get severe) autism, cerebral palsy, and epilepsy. As a child and teen she was very abusive (towards herself and others) and our mom was constantly covered in bruises. She actually broke our mom's cheek bone once. Many people told my parents to write her off, to put her in a special facility. They never did and never would. My parents' strength was and is superhuman. There wasn't a lot of resources then, so our mom would come up with ways to adapt things for my sister. Her innovation is incredible. My sister needed a bed that was safe, but she was too big for a crib - so my mom and dad made one out of pvc pipes to fit a twin bed. They covered the pvc in large pool noodles and then our mom hand sewed strong mesh around every side. My sister would rip the mesh almost every night and my mom would sit there and sew it back together the next day. She also came up with pj's that she couldn't get out of but buying denim vests and jeans and sewing them together with a zipper in the back to make soft denim coveralls.

Growing up, I loved my sister but man did she get on my nerves! Family outings were dictated by whether or not my sister would allow it. If she was having a bad day, we canceled. If we actually went out and then she abruptly needed to leave, we did. Growing up this was annoying and sometimes hurtful. I would be excited to be going somewhere only to have it canceled because my sister was acting up. I understood it and knew it was right to cancel but the "child" part me was angry. She still can get on my nerves. She has always loved music and needs something playing at all times. She also loves Raffi (not just any Raffi, one particular video on repeat) and prefers that be playing at all times as well. Now, in all fairness this is a major improvement. For years (I mean like 10 year strong!) she loved Barney. Yeah, I don't think I need to explain that one at all. You all are groaning right along with me. Seriously, you know it's bad when you catch your dad signing Barney songs in the shower and when you ask him about it he has no recollection of the event at all. Or when you hear it playing in the background of your dreams. Yeah that's fun, let me tell you! She is non-verbal, but very loud. The neighbors can hear her screaming with all of our doors and windows closed. I love her to death, but she can be such a pain in the butt!

I'm allowed to say that because I'm her sister. She will be 30 soon and still lives at home. She is still as loud as ever but much calmer. She seems happier, more relaxed. That makes me so happy. There are still rough days and her health is slowly getting worse with every passing year, but my family is committed to giving her the best life we possibly can.

My childhood may have been different, but I wouldn't want to have any other sibling in he world.