Showing posts with label eating disorders. Show all posts
Showing posts with label eating disorders. Show all posts

2/24/14

About Eating Disorders: NEDAwareness 2014

NEDAwareness Week 2014 is officially underway! What is NEDAwareness Week? Go here, and here to find out more ;) 



As the week gets into high gear, I feel it's important to put up a basic info post.           


Here's some general info from the National EatingDisorder Association for NEDAwareness Week: 

ABOUT EATING DISORDERS

What is an Eating Disorder?

Eating disorders – such as anorexia, bulimia, and binge eating disorder can include extreme emotions, attitudes, and behaviors surrounding weight and food issues. According to the American Psychiatric Association’s Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5), these are the basic characteristics of some of the most common types of eating disorder:

Anorexia Nervosa:

  • Restricting food intake to below the requirements for a particular individuals physical requirements
  • Intense fear of weight gain and obsession with weight and continual behaviors to prevent weight gain
  • Inability to recognize true body shape or recognize the seriousness of condition
  • May or may not use binge eating and/or purging behaviors

Bulimia Nervosa:

  • Eating an unusually large amount of food at one time followed by compensatory behaviors (such as vomiting, taking laxatives and/or excessive exercise) to prevent weight gain
  • A feeling of being out of control during the binge-eating occurrence
  • Self-judgment largely based on weight and shape 

Binge Eating Disorder:

  • Recurrent situations of eating an unusually large amount of food at one time
  • A feeling of being out of control during the behavior
  • May have feelings of shame or guilt towards eating which can lead to eating alone
  • May eat until the individual is beyond full to the point of discomfort
Note: There are several other types of feeding or eating disorders outlined in the DSM-5. Many people may not have every symptom of a disorder, but may still receive a feeding or eating disorder diagnosis. If you or your loved one is experiencing significant discomfort surrounding food that interrupts basic functions but does not meet the above criteria, you should still seek professional help.
***I will be addressing those later in the week*** 

Is it an Eating Disorder?

A popular misconception about eating disorders is that if someone has one, it will be obvious by their low weight and starvation habits. However, those suffering from eating disorders can be of any weight and are often adept at hiding their illness. To help with early detection, here is a brief list of eating disorder signs, symptoms and behaviors to keep an eye out for as they may be indicative of a bigger problem:
  • Makes frequent comments about feeling “fat” or overweight
  • In general, behaviors and attitudes indicate that weight loss, dieting and control of food are becoming primary concerns
  • Evidence of binge eating, including disappearance of large amounts of food in short periods of time or lots of wrappers and containers indicating consumption or large amounts of food
  • Evidence of purging behavior, including frequent trips to the bathroom after meals, signs and/or smells of vomiting, presence of wrappers or packages of laxatives or diuretics
  • Develops food rituals (e.g. eats only a particular food or food group, excessive chewing, doesn’t allow foods to touch, etc.)
  • Skips meals or takes small portions of food at regular meals
  • Hides body with baggy clothes
  • Maintains excessive, rigid exercise regimen—despite weather, fatigue, illness or injury—because of the need to “burn off” calories
  • Drinks excessive amounts of water and/or uses excessive amounts of mouthwash, mints and gum

How Can I Help?

When initiating a conversation with someone who may have an eating disorder, it is important to remain supportive, non-judgmental and let them know that they are not alone. Here are some recommended Dos and Don’ts of talking to someone about their eating disorder:

Do:

  • Learn the difference between facts and myths about weight, nutrition and exercise
  • Ask what you can do to help
  • Listen openly and reflectively; be patient and non-judgmental
  • Talk with the person in a kind way, when you are not angry, frustrated or upset 
  • Explain the reasons for our concerns, without mentioning specific eating behavior
  • Ask if he/she is willing to explore these concerns with a healthcare professional who understands eating disorders
  • Remind your loved one that many people have successfully recovered from an eating disorder

Don’t:

  • Invade privacy and contact the patient’s doctors, friends or others to check up behind his/her back
  • Demand weight changes (even is clinically necessary for health)
  • Insist the person eat every type of food at the table
  • Make eating, food, clothes or appearance the focus of conversation
  • Offer more help than you are qualified to give

CALL THE HELPLINE NOW

Call NEDA's toll-free, confidential Helpline, Monday-Thursday from 9:00 am - 9:00 pm and Friday from 9:00 am - 5:00 pm (EST)

1-800-931-2237


Kicking Off NEDAwareness Week 2014

So there's this really awesome thing is going on this week hosted by an incredible organization. It's called NEDAwareness Week by National Eating Disorder Assoctaion (NEDA). Aside from being an incredible force for raising awareness, NEDA also has a helpline, screening tools, and information not only for those sufferering and those in recovery, but also parents, siblings, peers, coaches, and teachers. I participate in NEDAwareness Week last year and loved it! I met some incredible people, made lifelong friends, and gained awesome resources to pass along. 

This year's theme is "Get In The Know"

 Get In The Know(from NEDA's site)


Our Theme: "I Had No Idea"

This year's NEDAwareness Week theme is "I Had No Idea" to raise awareness towards the significant impact eating disorders have on individuals, families, and communities across the nation. The more people who learn about these life-threatening illnesses, the more lives we can save. Last year, 100% of U.S. states hosted NEDAwareness Week events and activities. Additionally, 51 international countries participated in raising awareness. This year we strive to surpass these numbers, and have everyone get in the know and do just one thing to raise awareness!

Our Mission

The aim of NEDAwareness Week is to ultimately increase outreach and awareness of eating disorders and body image issues, while reducing the stigma surrounding eating disorders and improving access to treatment resources. Eating disorders are serious, life-threatening illnesses - not choices - and it's important to recognize the pressures, attitudes and behaviors that shape the disorder.

What is NEDAwareness Week?

NEDAwareness Week is a collective effort of volunteers, including eating disorder professionals, health care providers, students, educators, social workers, organizations and individuals committed to raising awareness of eating disorders.  The impact of increased outreach efforts leads to a greater chance of people seeking out resources and help for an eating disorder, which ultimately saves lives.

What are the Key Messages of NEDAwareness Week?
This year the National Eating Disorders Association is stressing the need to address eating disorder misconceptions - as many individuals, families, and communities are not aware of the often devastating mental and physical consequences - and highlights available resources for treatment and support. We urge you to talk about the pressures, attitudes and behaviors that shape these disorders with your family, friends, colleagues and community by doing just one thing during NEDAwareness Week. Learn more about the key messages for 2014 NEDAwareness Week and share with others so they can get in the know!

How NEDAwareness Week Works
NEDA asks everyone to do just one thing to help raise awareness and provide accurate information about eating disorders. NEDAwareness Week participants can choose from a huge range of ways to get involved: Distribute info pamphlets and put up posters, register as a Volunteer Speaker or host a Volunteer Speaker, post information on Facebook, or plan interactive and educational events like a community meeting, panel discussion, Barbie event, movie screening, art exhibit and more.
As a NEDAwareness Week participant you can be involved in any way that works with your schedule, resources, community, and interests.  These events and activities are vital to attracting public media attention - on local, national and international levels. 
Eating disorders are serious, potentially life-threatening conditions that affect both a person’s emotional and physical health. In the United States alone, 30 million people will be impacted by an eating disorder at some point in their lifetime. These conditions affect all kinds of people and don’t discriminate by race, age, sex, age or size.
If you or someone you care about might be suffering from an eating disorder, it is important to educate yourself and seek professional guidance as soon as possible because early intervention is key to successful recovery.
This page will provide a basic information about eating disorders, outlines how to spot a problem early and offers suggestions on how to talk to someone who is struggling.



Still have questions? Check out their FAQ section 
***This week I will be posting on here, Facebook, Twitter, and Pinterest for NEDAwareness Week. I invite and encourage everyone to share this information. Widely! Check out NEDA's site. Take the screening test - it's 100% anonymous, free, quick, and completely online. Don't be afraid to call the help line.

CALL THE HELPLINE NOW

Call NEDA's toll-free, confidential Helpline, Monday-Thursday from 9:00 am - 9:00 pm 

and Friday from 9:00 am - 5:00 pm (EST)

1-800-931-2237



9/26/13

Anti-Anti-Obesity




The anti-obesity campaign really irks me. If it was a healthy living campaign, focusing on healthy habits vs the numbers on a scale, then I'd be much more enthusiastic about it. Unfortunately, that is not what is happening. More and more the path is weight shaming and stigmatizing in the vein attempt to regulate our country's weight issues. The topic of weight stigma is far to vast for me to sum up in one post - especially since I'm exhausted and should really be asleep right now. Seriously, writing sentences that are comprehensible is really interesting with brain fog and neurological pain. So for right now I will focus on one area of this topic that is very important. Our youth.

Dina Zeckhausen is a psychologist and founder of the Eating Disorder Information Network. In an interview with CNN in 2013, Dina reported seeing kids in third and fourth grade who are already worried about being fat.

"There is so much emphasis on obesity," Zeckhausen said, "that there's a danger that we are going to produce a lot of anxieties in kids around weight."
See full article here


It seems like every other week (if not day) I'm hearing about some new way our communities are "fighting obesity" and each time it seems to be more infuriating than the last. Everyone has already heard about the "fat letters" sent out by some schools. Some say they're dangerous while others say that parents are being over sensitive. Honestly, if the schools were really trying to educate and advise families about health they would focus on teaching and focusing in healthy habits, not a number. Numbers do not indicate health.

There are many, many larger sized individuals who eat healthy, are very active, and have no health issues - except for what the scale says. Let me be clear, if someone (of any size) has a health issue, then treat that health issue. But that’s different than treating their weight as the issue. 


Carmen Cool, MA, LPC said it beautifully: “With all due respect, I need to disagree with you that we need this war on obesity. What we need, is to work together to end it. Not by making fat people thinner, but by recognizing and celebrating the truth of body diversity.  Weight is not the problem. The way we make assumptions about it is the problem. I want to live in a peaceful world. And a peaceful world starts with a peaceful self. Rather than fighting fatness, why don’t we help people of all sizes feel peaceful in the bodies they have.” 

see full article here: http://bedaonline.com/wsaw2013/weight-stigma-viewed-eating-disorders-lens-carmen-cool/#.UkJy_429LCT




I brought this up with my mom today and she immediately jumped in agreeing that it is ridiculous and dangerous. Aside from the obvious (obvious to my mom and I) health risks it poses, there is another very valid point she made regarding schools sending out "fat letters" that I had previously over looked - When there are students failing and struggling in reading and math, why would they focus on what the student looks like? Isn't that a bit of course? When there art, music, and science opportunities shut down by lack of funds why would the schools set their sites on the appearance of health (note the word appearance) with little to no regard for the individual student and their real health. Better yet, how is it even the school's place to decide who is healthy vs unhealthy based on a number? Oh, that's right, it's not.



If I am ever at a school (as a parent or otherwise) and I find out that the school has been sending anyone weight stigmatizing letters or promoting weight stigma in any way, I will be very upset. I will be beyond upset. I will be their worst nightmare.

8/19/13

Lost Down The Rabbit Hole

There seems to be a new fad going around in full force: clean eating
The root cause of this lifestyles is admirable and important. I love that more people are becoming aware of what they're consuming and really beginning to examining their food... 

That being said, I desperately want to caution those who have adopted this lifestyle change. So here is my cautionary tale:

{source}
http://www.michellechant.com/2011/08/
curiouser-and-curiouser-down-the-rabbit-
hole-and-back/

I wanted to be a lean, mean, clean eating machine. I did everything right. I did my research. I balanced my meals. I was informed, and level-headed. I workef put everyday and had six pack abs. Despite all of that, my obsession turned lethal. The scary truth is that being "healthy" nearly killed me. Now anytime I see someone being/striving to be uber-healthy I feel an urge to warn them, to show them the otherside of the looking glass. 
 
 *Let me clearify, by "healthy" I mean: Cutting out processed foods, trans fats, unnatural sugars, added sodium and chemicals, preservatives, refined flours, dairy, and meat. I ate a very balanced vegetarian diet (I did eat fish and egg whites). 

At about the same time that I had mastered clean eating, I also began experiencing terrible GI issues (including extreme nausua, severe cramps, and stabbing pains). I don't believe my new lifestyle had much to do with it. I felt physically better whilst adhering to it,and  drastically worse when I veered off-course. I had bouts of milder symptoms before (off and on for several years, actually) so I believe the severe physical illnesses I was experiencing were most likely the same thing. I do belive that my compromised health exasperated my underlying medical issues (I just recently got my answer as to what this mystery ailment that has plagued me for over 10 years is - Dysautonomia). Coincidentaly, the deepest part of my struggle with ED occured just when my Dysautonomia really started to get revved up. As that gained strength, the physical pain of my body was in became too much. The pain from just ingesting food was great enough to cause a fear so intense that I would develop a full-fledged phobia. 

I should also mention that I experience (and sometimes still do) a strange compulsion to move after ingesting something. This started several years before my epic battle with ED began. It was as if being idle turned the food into lead, which would painfully weigh down on my stomach. That "full" feeling was physically painful. Excruciating. 

Soon after the clean eating and fitness obsession hit its pinnacle, the delusions began. If I worked out, the calories I ingested would turn to muscle and it would fuel my body more efficiently. If I didn't, then said calories would turn to fat and would be wasted. The health and fitness fanatic in me just screamed "Muscle is good, fat is bad!"

I will always remember one particular day in the fall of 2002. It was then that I realized I was completely at the mercy of my eating disorder. This was the day that I knew I was sick. I knew I was too thin. I knew I was dying. Even more startling - and important to convey- is the fact that I didn't want to be that thin. Not in a million years. I wanted to gain weight. I wanted to be like I was before: Athletic, strong, fit, lean but not skinny. What happened that day and the revelation I had, shook me to my very core. I was terrified. That moment went something like this:

It was morning and I was sitting on the couch, watching TV while I ate breakfast which consisted of a regular sized bowl of cereal (some sort of Kashi), soy milk, and 1/2 a banana. Sensible and satisfying. 

Immediately after ingesting it, I panicked. That was the day I knew I was a prisoner on death row. The only reason I didn't reach out and seek help right then and there was because of the social stigma attached to eating disorders. I was too scared of what everyone else would think. The fear of being labeled a weak, entitled little white girl was too strong. This vivid memory is locked in my mind, forever etched into the walls of my psyche. I dig it up anytime I hear that voice - that dreaded siren call of ED- whenever I'm on the brink of relapse. This memory reminds me of the journey back home and how long, scary, and dangerous it was. Because of that, I don't dare jump back down that rabbit hole.

“In another moment down went Alice after it, never once considering how in the world she was to get out again.” 

* Side note: I think it is important to be honest in order to truly grow awareness. However, to keep things as safe as possible I will NOT divulge information such as: weight, height, BMI, or clothing size.


The depth of my rabbit hole

*Upon Hospital Addmittance*
    Average body temperature: 95 degrees
    Average heart rate: 40bpm
    Hospitalized in critical condition
    Beginning stages of multipule organ failure
    NG (nasogastric) Feeding Tube (24hr/day feeds) 
    PICC line with 24 hr IV infusion nutrition (TPN - Total Parenteral Nutrition)
    Refeeding Syndrome after starting IV and NG tube nutrition.
    Gastroparesis
    Severe GERD
    Water intoxication 

How long did it take  me to make my way out of just that part of it?
    I was rid of the PICC line and NG tube after 6 months, but was still unable to attend school for another year. 

Ok, how about after that? 
    It's 11 years later and I still have issues with gastroparesis. 
    I have weak joints, osteoarthritis, gastritis (which causes my stomach lining to bleed periodically), neurological damage (though some of that is due to a medication reaction a year later), memory problems... That's all I can think of at the moment. 

Please, please, please be careful! Being healthy and fit is wonderful. No longer being able to enjoy (or even eat) something "unhealthy", or just a day to be "lazy" is not. 



8/11/13

Letter to my 16 Year Old Self

Dear Me,

Yeah, this is me...Er, you... In the future... I know what you're thinking - but this isn't a dumb prank your friends are pulling. You're quirky and aren't one to dismiss strange things, so I'm going to assume that about half way through this you're going to just take my word for it. I also know that you're crazy busy but please just listen and give me the benefit of the doubt. So, yeah, this is you in the future... I'll let that sink in a minute. Ok. Now that we're on the same page (or at least the same book), I'll begin. You are 16, and unlike most 16 year olds you don't take yourself to seriously. That's good. Hold onto that. The adults in your life really do respect you and what you have to say. You don't have to try so hard to impress them, or anyone for that matter. For some reason (believe me, you'll spend years trying to figure this out. You'll come up with some theories, but nothing earthshaking. No crazy revelations.), you feel that you must be the best. Quit chasing that coveted #1 spot. In everything. I know that working your ass off only to make it to the top 5 (in everything) is frustrating - and for once it would be amazing to actually be the best in something - but top 5 is actually really awesome.

After that speal I feel compelled to tell you that you don't even need to try for top 5. No matter what anyone says. You don't have to exhaust yourself trying to impress everyone because of some idealized notion society has placed on you. Everything is not a competition. That also goes for your love life. Let's face it, it's not even about the boy anymore. It's a competition. If you could just move on it would save a lot of heartache for several people. Teenage angst and melodrama aside, you really can stop competing with yourself. Stop pressuring yourself to be the "ideal" daughter/student/friend/etc. Let go of that incessant need to be "perfect". To have zero flaws. LET IT GO! It could help us tremendously in the future if you would just realize that you already are perfect. There is no need to keep chasing the mirage. That's all it is, a twisted little mirage. In two years someone will say these words to you: "you ARE perfect" and they will resonate with you more than any truth ever before. I know that 2 years seems really close, but it is actually light-years away. You're rolling your eyes right now and are thinking, "Yeah, yeah, yeah. Whatever. Everything is going great right now. I have awesome friends and everything is going according to my plan. I have a high GPA and am on track for a stellar transcript. I have scholarships lined up and it's all because of my hard work. That hard work that you're telling me to let up on. If I let up, I am never going to make it. I'll fail."


That takes me to my next message.
In a year your world is going to come crashing down around you. You will have no warning (other than this right now) and you'll panic. You'll panic like you've never panicked before. Yeah, I thought that would get you're attention. To be honest, I'm conflicted with whether or not to disclose certain details of this chapter. If you know before hand and somehow manage to side-step it, it would change everything about you... I know I would have liked some warning, so I'll tell you anyway. If for some reason, through some kind of divine intervention you do see it coming, just let it happen. If nothing else, let this be of some comfort and hopefully it will soften the blow of what is to come. In one year life is going to test you. Big time. You MUST survive. No, I'm not being dramatic. This is a real. It's life or death. Ok, don't panic. You're panicking, aren't you? Stop. Breath. 

It's nothing like what you are thinking, or could possibly think. You aren't going to be stalked by some crazy serial killer or anything. When your world is bleaker than anything you've ever been through, trust in your friends. They really are great friends. They will stand by you through everything. Don't cut them out. You won't want to talk to people, but try. They care more than you realize. Give your parents a break. They aren't trying to control you. They are scared. Terrified. Stick to your guns. Just because they are supposed to be "experts" doesn't mean they know what's best. Listen to your inner voice. Above all else, remember: This too shall pass When it does, wonderful things will happen because of it - but I can't say anymore about that ;) Be strong. Your life may not happen as you so carefully planned, but it will be perfect. *Thank you, Carrie at Just Mildly Medicated for this great blog idea. I loved it :)

Old School Blogging

 I was visiting one of my favorite blogs, Hope and Coffee, and I saw that she did this "old school blogging" post. It looked pretty fun, and yeah, I needed something kind of fluffy to post (I admit it!). So I borrowed her template and here's what I got:

What where you doing 10 years ago?

Wow, OK, so "fluffy" isn't exactly going to happen as much as I thought... I just realized that 10 years ago I was as close to dead as you can get. I was a junior in high school. I had everything going for me: National Honor Society member, top 10 student ranking, Pipe Major in the pipe band (our town has a Pipes and Drums band -bagpipes- that competes internationally), soloist in the symphonic band (piccolo), tons of friends, AP classes, scholarships, etc. I was extremely healthy and fit. I only ate whole foods (way before the trend) and was a vegetarian. Then the floor fell out. I became very ill, very fast. With in 3 months I had dropped 30lbs (I was 4'11", so 30lbs is A LOT). The weight loss was largly due to an underlying medical condition that caused crippling pain whenever I ate anything. The doctors didn't know what was going on. By the time I had reached such a low weight, I had developed a full-fledged phobia of food. All I had to do was see food and my stomach felt like it was being stabbed. Everything that happened when I ate, I would suddenly feel. I was admitted to one of the country's best children's hospitals (All Children's Hospital in St.Pete, FL). At one point the doctors, along with a chaplain, pulled my parents aside into a conference room and told them that if they couldn't get me to eat with in 6 months, I would die (that's while being on a feeding tube, TPN, oxygen, etc.) Long story short less long, I was fighting for my life. I later acknowledge that I did have an eating disorder, but I also had a chronic medical condition. My eating disorder was ignited from the combination of that undiagnosed medical condition and my need (obsession) to stay healthy and fit. The later has just recently become recognised by the eating disorder community as orthorexia. So, in a nutshell (albeit a large nutshell) that's what was happening 10 years ago.

5 Things on your To-Do list
  1.  Keep kids entertained, engaged, learning, etc... Ugh, can't that be my 5?
  2.  Laundry
  3.  Write/Research
  4.  Make dinner
  5.  Clean snakes' cages and feed Opal
What are 5 snacks that you enjoy?

Can I count coffee? Because coffee is my favorite everything ;) OK, fine, I'll put down 5 actual foods - Chocolate (the darker, the better), fresh fruit, pretzels, Luna Bars, raw veggies.

Name one thing you would do if you were a millionaire? Pay off our debt! Pay off my parents' deb, my mother-in-law's, and my Yia Yia's too. Fix our house in NC so someone will actually buy it (shoot, at this point it would be just so someone would actually want to sell it) and buy one here so my parents can have their house back. Savings! Donate!

Name some places you have lived: My husband and I both grew up in Dunedin, FL. When we were dating he became a US Marine in 2004 and was stationed in Jacksonville, NC. We married right after his training ended and lived there for 8 years. Although, the 8 years were broken up with deployments. During long deployments I moved back to FL due to medical reasons. My hubby just ended his tour in the Corps and we are settling back in Dunedin. So if anyone knows anyone who wants to hire an honorably discharged Marine for more than part-time (you know, so we could actually pay our bills), that would b awesome ;)

Name some bad habits you have: Checking (more info here), not resting when my body says it needs to rest -but seriously how can I when I have tons of stuff I need to do? Always being sick is sooo annoying! Am I right? You know I am.

Name some places you have worked: I have had several jobs over the years, but they all ended ether by hospitalizations or moving. Some of those jobs/places would be: Gymnastics coach (I was a gymnast for 10 years), Victoria's Secret, and Neilsen (market research). I was also in school for a chunk. I've done a little freelancing here and there, but now I'm a SAHM.

7/29/13

NEDA Awareness Week

Through my own (miss)adventures down the rabbit hole and the multiple journeys back, I have gotten to know NEDA. 

NEDA is the official Eating Disorder Association and it is wonderful. Over the years I have been to many sites that are geared towards this audience but I have never found one as indispensable as NEDA. Their information is unmatched, as is their resources. This is not just an organization for those afflicted, it is a place for everyone. Moms, dads, siblings, friends, men, women, young, old, and everything in between. 

Eating disorders do not discriminate. This week is NEDAwareness Week. 

The purpose of this week is to gain awareness and educate as many people as possible. Their theme is Everyone Knows Someone. How true! I wanted to do a special post(s) for this event, but once again had my dates mixed up. I didn't realize until yesterday that NEDAwareness is this week! 




Confession: I'm totally throwing this together at the last minute. 
Something that I have always found incredibly disturbing is the blind ignorance that people have towards eating disorders. I know that for me, I was petrified of very notion that I might have an eating disorder. I watched the health class videos and the after-school specials. I knew I wasn't the stereotype. Yet, I was so scared of anyone even thinking I might have one - not because I would be pressured to get better, but because of the negative view towards these disorders and myths that entangle them. I aim to help clear that up. 
Eating disorders do not discriminate! The portrayal of a young (usually white) female with poor self-esteem is very inaccurate. Men are afflicted just as women are. Every age bracket suffers - the very young, very old, and every age in between.


Everyone's battle is unique. The only thing that is a constant is the danger. A paper by Papadopoulos studied more than 6000 individuals with AN over 30 years using Swedish registries. Overall people with anorexia nervosa had a six fold increase in mortality compared to the general population. Reasons for death include starvation, substance abuse, and suicide. Importantly the authors also found an increase rate of death from ‘natural’ causes, such as cancer. Source: NEDA By: Walter Kaye, MD, Professor of Psychiatry, Director, UCSD Eating Disorder Research and Treatment Program, University of California, San Diego One thing that is probably the most alarming to me (especially now, as a mother) is the upward trend that has steadily kept building. 

By age 6, girls especially start to express concerns about their own weight or shape. 40-60% of elementary school girls (ages 6-12) are concerned about their weight or about becoming too fat. This concern endures through life (Smolak, 2011). 
 




These diseases are serious business! Complications of Anorexia Nervosa:
  • Abnormally slow heart rate and low blood pressure, which mean that the heart muscle is changing. The risk for heart failure rises as the heart rate and blood pressure levels sink lower and lower.
  • Reduction of bone density (osteoporosis), which results in dry, brittle bones.
  • Muscle loss and weakness.
  • Severe dehydration, which can result in kidney failure.
  • Fainting, fatigue, and overall weakness.
  • Dry hair and skin; hair loss is common.
  • Growth of a downy layer of hair—called lanugo—all over the body, including the face, in an effort to keep the body warm.
A review of nearly fifty years of research confirms that anorexia nervosa has the highest mortality rate of any psychiatric disorder (Arcelus, Mitchell, Wales, & Nielsen, 2011). Complications of Bulimia Nervosa
  • Electrolyte imbalances that can lead to irregular heartbeats and possibly heart failure and death.
  • Electrolyte imbalance is caused by dehydration and loss of potassium,sodium and chloride from the body as a result of purging behaviors.
  • Potential for gastric rupture during periods of binging.
  • Inflammation and possible rupture of the esophagus from frequent vomiting.
  • Tooth decay and staining from stomach acids released during frequent vomiting.
  • Chronic irregular bowel movements and constipation as a result of laxative abuse.
  • Peptic ulcers and pancreatitis.
Complications of Binge Eating Disorder (BED):
  • High blood pressure.
  • High cholesterol levels.
  • Heart disease as a result of elevated triglyceride levels.
  • Type II diabetes mellitus.
  • Gallbladder disease.
There are other, atypical eating disorders like EDNOS  (eating disorder not other-wise specified**)  orthorexia, and diubulimia. 

**DSM has officially changed the EDNOS term and criteria to better diagnose the "gray area" category of eating disorders that many fall into. I will be writing a post on this later (8/13)

For more information on specific topics visit their Articles section. 

There is also a database of support groups/networks as well as recourse links 

 NEDA also provides free, online screenings and a click to chat feature in the help and support section. 

 

Eating Disorder Links and Resources

 



NEDA - (National Eating Disorder Association) 



The What and Why of Sapling Stories

So I recently (recently, as in like, 2 days ago) found out about WEGO Health and decided it was a good fit for me. So I'm giving it a whirl! WEGO has a challenge this month with writing promos for each day - the "every day" part was almost enough to send me packing right there. I was planning on cranking a quick recap of the couple of days I had missed the other day, but my body had other plans and I ended up having seizures instead. Fun. So here I am to try again!

Day 1: Why do you write? I started this blog as an outlet and actually intended it to be a family-oriented, positive parenting and pre-school activity type blog (hence the name "The Sapling Stories). As I met other bloggers and become more aware of the blogging community, my content shifted. With out realizing it, my blog became centered around awareness. Awareness for things I feel very strongly about. I just naturally started writing about them. The main one that I feel grabs my attention the most is eating disorder advocacy. I am a survivor (I feel like I should say "surviving" because recovery is a continuous thing that never really ends, or at least it hasn't completely ended for me) Actually, I had a support blog years ago on Xanga (I said it was years ago), but stopped for some reason when everyone was switching over to MySpace (my husband was also deploying for the first time and everything was kind of topsy-turvy). I battled stereotypes, stigmas, myths, and death. Now that I have children it scares me sh*tless that they might battle the same demons. My other two are Autism (special needs in general, really), and chronic illness. Special needs because of my sister and chronic illness because, well hell, that's what I've been dealing with for most of my life (that is also a huge factor into my battle with anorexia/bulimia/orthorexia - seriously, eating disorders are much more complex than society thinks!). I have found a support network in the online community that I was desperately lacking before And it has been amazing.

Day 2: Tell a bit about your conditions, 5 things you want people to know about them, and a few links to other articles you've written. Note: My links will be highlighted throughout, not listed separate ;) I kind of just covered the "what", so here's the 5 things: 

  Eating Disorders
  1. Eating Disorders do not discriminate! It is not a teenage white-girl affliction. Every age group, of every ethnicity, of every walk of life is affected.
  2. You can't tell anything by a person's size. Just because someone isn't rail-thin doesn't mean that they're not suffering.
  3. It's not about food - not completely. ED's are complex, very complex.
  4. You can't just "snap out of it" or "get over it". It takes time and will be the hardest thing you've ever done. For me it took a year of grueling, intense hospitalizations (including NG Tubes, IV TPN through a PICC, oxygen therapy, and missing my entire senior year of high school) and several years of outpatient treatment. 
  5. It starts way earlier than you think. I can remember being preoccupied by the need to be "perfect" as far back as I can remember. I'm talking age 5-ish. And let me make it clear - No one ever implied that I needed to be "perfect". It's not all a societal thing, genetics and brain chemistry contributes greatly.
Autism and other special needs:
  1. Just because someone has special needs (may it be cerebral palsy, autism, Down's syndrome, or anything else) doesn't mean they can't hear you (to all the smug trolls: if they actually cant hear, they still know) They know when you're being mocking and judgmental, and they feel the pain as much as anyone else.
  2. The R-word is not okay. Ever.
  3. Even though my sister functions at an 18month old level and is non-verbal, we still have sibling rivalry. We get into fights and argue just like any other siblings.
  4. Everything has to be adapted. That bed you just bought? Yeah, that's gonna have to be modified so it's safe.
  5. Everyone has to be flexible. Just because you planned a day trip to the beach that you have been looking forward to for weeks doesn't mean it's going to happen. You may get half way there and need to turn around because its not a good day for them - and you'll completely understand and go with it. Even when you are 7 years old.
Chronic Illness:
  1. Everyone needs to read The Spoon Theory
  2. Just because someone's in a wheelchair doesn't mean they are paralyzed.
  3. Believe me, I do not want to be in bed all day! Don't give me that "must be nice" bull. It's not and it isn't funny.
  4. Dear doctors: When I come in to see you and I explain what's been going on, do not look at me like I'm insane. Even if my vitals are fine, just take the damn time to check it out.
  5. Just because a had a good day (or week or whatever) yesterday doesn't mean that I'm going to have a good one today. No, I don't know what's wrong or why I'm worse today when I was "fine" yesterday. I wish I did.
Day 3: Post a picture that captures your condition/your experiences 



Advocacy Aspirations

Day 5 for the WEGO Health blog challenge is Aspirations. 

 We are supposed to write what our dream activism aspirations are. No limitations - money, time, health, or otherwise. We are told to dream BIG! 

Wow, no limitations? Really? That should make it easier, but it doesn't. I've become so used to my limitations that its hard for me to think outside of them. After a while, I started to grasp the idea and actually formed something - and through that "dreaming big" I was able to find things that were actually with in my limitations. Coolness. Identifying these aspirations helped me realize what I really want to advocate about and what isn't all that important to me. 

Chronic illness - yeah, I have them and they suck. I have battled them for years. Yet, I know so many other people who are doing an amazing job advocating for them that I don't really feel the need to (Living With Bob and Just Mildly Medicated, I'm talking about you!) That leaves me with EDs and special needs. These are equally important to me. I watched my family struggle to provide what my sister needed (wheelchairs, specialized therapy, modified housing and vehicles, etc) and I know how hard it is. My ED almost took my life. The fact that it was so heavily influenced by the chronic illnesses I faced made it much harder to be properly treated. My Advocacy Aspirations ED (in order from most realistic to Dream Big No Limitations)
  • Gain blog traffic
  • Meet other advocates
  • Be able to pay some bills with my blog
  • Link up with NEDA and participate in events and
  • Speak at events
  • Host an event
  • Link people together with organizations who can help
  • Help place people in treatment centers/ help fund their treatment (it's ridiculously expensive and most insurances don't cover them)
  • Start a charity or program of some kind
Special Needs (same order minus the "blog" stuff because, well, it's the same blog)
  • Raise awareness
  • Link families together with local resources and support networks - and through that, help families obtain those critical things that are so hard to get: wheelchairs, therapy, lifts, prosthetics, braces, etc.
  • Link families together with enrichment organizations/events (recreational, fun stuff)
  • Help my mom start her non-profit

What animal would your chronic illness be?

TDay 8: If your condition was an animal, what animal would it be? 

I initially was really excited about this one - but some of the chronic health problems I deal with (or people close to me deal with) are terrible things that I don't want to associate with any animal (I love all animals and don't think that's fair). My first thought was to assign a mythical creature to each one. Mythical creatures are super interesting and many have such complex backgrounds and characteristics that it just seems natural to link them with something as complicated as a chronic health problem. I jumped on Google and I Googled away for far too long and was still stuck behind a wall. I don't know if its the perpetual brain-fog I've been in or what- I mean, I had ideas, just nothing that made me go "Oh yes! That's it!". So, alas, that's my quandary. I do tend to over-think things and this could very well be one of those times. So I started to think about the real animal associations and figured that if I were to assign an animal, it wouldn't be the animal as the condition, but rather, the animal as a person with the condition. That is a way I can use real animals with out feeling terrible. So here's a working list of what I came up with. I still think this idea is really cool. So please, if anyone has any ideas, share them! I really want to incorporate not only the conditions that I suffer from, but the ones that those close to me suffer from as well.

Epilepsy: Mythical: Something celestial or elemental. Real: Firefly 

Eating Disorders: Mythical: Will 'o the Wisps. In European folklore, these lights are held to be either mischievous spirits of the dead, or other supernatural beings or spirits such as fairies, attempting to lead travelers astray  
Real: Hummingbird

Fibromyalgia: Mythical: ??? Real: ???

Dysautonomia/POTS: Mythical: Chimera or shape-shifter or the Hedley Kow  A very mischievous, but not dangerous, shape-changing boggart which used to plague the villagers of Hedley (North-umberland) by his many tricks (Henderson, 1866: 270-1). A farmer mistook him for his own horse, a milkmaid for her favourite cow, an old woman for a bundle of straw; in each case he caused unexpected trouble, and then vanished with a loud guffaw. He could even turn into the likeness of a girl, to trick her sweetheart into following him till he ended up knee-deep in a bog. Real: ??? 

Autism: Mythical: Unicorn - Everyone knows of them, but very few actually know them. Mysterious, illusive, and Pure. 
Real: ??? 

Cerebral Palsy: Mythical: ... total blank... Real: Coyote - Extremely clever and adaptable. Forms strong family bonds and is frequently misunderstood. 

So please, if you have any other ideas feel free to share them! Also, if you would like another condition represented on here that isn't, let me know! I would love to expand this! 

HAWMC Day 13

This was actually a little more difficult than I had originally thought. Well, no that's not entirely true. It was pretty easy until I had a flair-up the other day, after that it was quite... Interesting. So with out farther adieu, here are my random acrostic-esque words.  
  • C - constant
  • H- hope
  • R- rising
  • O- over
  • N- no
  • I - improvement (or)
  • C-  cure
  • A- and
  • L- listening (and)
  • L- learning
  • Y- you
 
  • A- are
  • W- what
  • E- encourages
  • S- spoonies
  • O- over
  • M- miles
  • E- everywhere

  • E- ever
  • P- perplexing
  • I- illness
  • L- leveling
  • E- entire
  • P- pathways,
  • S- short-circuiting
  • Y- you

  • E- excruciating
  • A- and
  • T- testing
  • I- illness
  • N- never
  • G- granting
 
  • D- dreams.
  • I- incessant
  • S- serpent
  • O- owning
  • R- reality,
  • D- decaying
  • E- every
  • R- real
  • S- sentiment
 This one I did not come up with. It is perfect, so I'm not going to mess with it ;)
  • A- always
  • U- unique,
  • T- totally
  • I- interesting,
  • S- sometimes
  • M- mysterious